First is Tamara Wilcox Curtis, mother to Fuzani.
For one she doesn’t know what her child will be able to achieve.
Not pushing and taking things away that helps with is development says that he will not be capable as an adult. I mean he’s only 7. He has a long life ahead.
We have to always continue to struggle for our children with special needs and autism. We are their best advocates and will do whatever it takes to get them as much support as possible. We have to be the ones to help them succeed. We have to go over the top. Even of it means that we are uncomfortable. We have to sacrifice.
Honestly I miss autism. I miss the therapy appointments. I miss the IEP meetings. Doctors appointments. Appointments with the developmental paediatrics, teachers etc.
I miss the visions I had for my child. The plans I had to make sure he would succeed as a teen and adult to the best of his capabilities.
A child is precious. A special needs child is even more precious and unique.
My 6 year old son unexpectedly passed away on feb 27,2015. It was and is still a shock.
I just knew he would be fine. Going to college, working a job, getting a trade, driving a car, catching a bus. Whatever he was going to be capable of….. Well he is gone now. I’m crushed. My dreams and ambitions for him will not come true.
He is the only one of my children with autism or a special need. He has a twin sister and a older brother who just turned 9.
Yes. Dealing with him was rough. He had the mindset of a 2 year old. We were still working on potty training. He was non verbal. However before he passed he his favourite words were awesome and actually. He could count to 20.
It was very difficult dealing with him. But I love him and always will. Now that he’s gone. It’s only been a little over 5 months. My heart is broken. There is no more rushing. No more makings special meals for him. No more school or therapy appointments no more hugs and kisses out the blue. No more of his personality. No more him.
He was closer to me than any of my other children. However I love them all the same. He demanded and needed a lot more attention from me.
Now he is gone.
A huge hole in my heart will always be here. We can’t grieve a child that isn’t gone. It’s impossible. My son with autism is gone and nothing can replace that. I would rather he be here with me now and I continue to struggle.
I know it’s hard.
But the loss of a child can by no means compare to living and dealing with autism and his development. If I could I would trade for him to be back with me…….
From a grieving mother of my child with autism who recently passed. You couldn’t even begin to understand what grief is.Do right by your children. We are their advocates.
RIP (play in peace) Fuzani 12/03/08-02/27/15
Then next we have Alison Greene mother to Aaron.
Aaron Green 14-1-11 to 1-4-15