Aging Out – for the first time in “My Autism Life” – I’m scared for my son’s future

Autism Hippie Aging OutAutism Daily Newscast welcomes Autism Hippie and our new series on Aging Out as we go step by step to develop a strategy and a plan that hopefully will create ideas and opportunities for the thousands of families faced with the same issue. . .

Now, What Do I Do?

“Welcome To My Autism Life.”

That was the first post I wrote when I launched my blog, Autism Hippie, on Facebook. At the time, I had no idea that the challenges my son, Mike, had overcome would have such a tremendous impact on so many families around the world. I had no notion that my humor, sarcasm, and knowledge would empower so many strangers. I simply knew we were fighters and I knew we were funny!

While it is difficult for me to say I have embraced autism, I have never questioned ‘why’ – I have always felt somehow destined to receive this gift and challenge. I have fully embraced my responsibility to make sure that the rights of all individuals with disabilities are fully respected.

When Mike was diagnosed, being denied by insurance companies, the majority of treatments were privately funded by the individual’s family. It was, quite literally, a bankrupting diagnosis. If you are the parent of a young child who has medical coverage for his/her treatments, I have probably lobbied to secure that coverage. I have, in fact, always been a part of that effort.

So, here I sit, searching for the words to tell you that for the first time in my autism life – I’m scared for my son’s future. I see a massive wave of families needing services coming behind us and a system so badly broken I simply don’t know where to begin.

That said, I will never use fear as an excuse to give up on my responsibilities to my son and our community. People with disabilities deserve opportunities for employment, engaging day programs, quality support staff, and quality housing.

My first stop was to attend my local Autism Speaks, Adult Services Town Hall Meeting to find out exactly what we are facing.

Autism Speaks Town Hall Meeting from Autism Hippie on Vimeo.

The news was not good!

So, I say, “Welcome To My Autism Life – Part 2”! Where am I starting? I’m back in the same grassroots I started out in 18 years ago. The good news – most of my friends are still in here with me!

That’s right, friends – I created a Facebook event and invited some of the local parents to get started. We, the grassroots, are going to build the future for our disabled family members.

While I will be blogging my journey, here, on the Autism Daily Newscast, you are invited to virtually attend the meeting for $5 using the Autism Hippie AnyMeeting link.

Why does it cost $5 to attend? Because wherever this journey takes us – it’s going to cost money!


COMING NEXT WEEK: The Meeting Agenda