Then next we have Alison Greene mother to Aaron.
Aaron Green 14-1-11 to 1-4-15
My son had two conditions. Uncontrolled epilepsy and autism. One of these made him very ill and killed him.
Epilepsy meant that he spent a lot of time in hospital having tests and seeing various specialists. He would have at least one day, if not two, every week having clusters of seizures and needing 100% attention from me. He had to take loads of different medications and we were often having to call 999 for an ambulance.
On the 1st April 2015 he had a huge seizure lasting 90 minutes from which he recovered only minutes later to have a heart attack and die. We always knew that there was a possibility he could die. But we lived on the edge all the time we forgot how real and near death was. I am now grieving for his loss.
He has left the most unimaginable hole in my soul. When he was buried part of me was ripped from me and went with him into the ground. But through it all I would not have missed a second of having him.
He was the most amazing child.
Yes, being on the autism spectrum made him different. He had sensory processing disorder in every area. He had developmental delay.
He couldn’t speak. But he taught me so much and it was a privilege to be his mother. He was like a ray of pure sunshine. Watching him achieve small goals was magical. He was intelligent and like any toddler very determined and cheeky. He may not have used spoken language but his communication was rich and varied. He had a way of seeing the world in so much detail.
He loved living. Whenever he was free from the epilepsy he just loved living. He made the most of every second.
Aaron’s autism meant that I needed a much deeper stronger connection with him. Far from going about my life feeling like the autism had taken something away from Aaron, I felt it was a beautiful part of him that made him shine. I used to look at him and be so proud.
Please don’t compare grieving for the death of a child with learning how to help your child with autism.
My life has been torn apart with Aaron’s death. But for him and my beautiful 9 year old daughter I not only continue but want to tell everyone how amazing he was. That autism is not an illness its an opportunity. An opportunity for us as parents, friends and family members to learn, be supportive, and enjoy the wonderful gifts that someone with autism can bring into our lives.
I have the utmost respect for both of these women and thank them for participating in this article, for giving their views and letting us share in their beautiful memories of their sons.
The woman who wrote the blog who’s comments include the suggestion of a the bereavement counselling service visiting a group of parents who’s children have special needs does not know the grief of losing a child. She does not know how it feels to never hold that child again to never gaze upon them as they sleep.
I hope this is read, I hope these beautiful mischievous little faces go viral as we celebrate Fuzani and Aaron, two children we grieve and have lost.
Dedicated to Fuzani and Aaron, two angels who are and always will be missed.
Editor’s Note: Opinions expressed by Autism Daily Newscast Contributors are their own. We encourage our readers to read the original blog post and comments discussed in this piece.